Privacy Policy
This Privacy Policy governs the manner in which The Brain Donor Project (“Company,” “we”, or “us”) collects, uses, maintains and discloses information collected from users (each, a “User,” or “you”) of the braindonorproject.org website (“Site”). By using this Site, you signify your acceptance of this Privacy Policy.
Personally Identifiable Information
We collect personally identifiable information from Users in a variety of ways, including, but not limited to, when Users visit our site, register on the site, fill out a form, and in connection with other activities, services, features or resources we make available on our Site. Users may be asked for, as appropriate, name, email address, mailing address, phone number, medical information, and other information. Users may, however, visit our Site anonymously.
We will collect personal identification information from Users only if they voluntarily submit such information to us. Users can always refuse to supply personally identification information; however, refusing to provide personally identifiable information may prevent a User from engaging in certain Site-related activities.
Other Information
We automatically collect other information about Users whenever they interact with our Site. This automatically collected information may include the browser name, the type of computer, the IP address, the domains from which Users are referred to the Site, and technical information about a User’s means of connection to our Site, such as the operating system and the Internet service providers utilized and other similar information.
Web Browser Cookies
Our Site may use “cookies” to enhance our Users’ experiences. Your web browser places cookies on your hard drive for record-keeping purposes and to identify you should you visit the Site again. You may choose to set your web browser to refuse cookies, or to alert you when cookies are being sent. If you reject cookies, you may still use the Site but please note that some parts of the Site may be limited or not function properly.
How We Use Collected Information
We collect and use our Users’ information for the following purposes:
- To run and operate our Site and other services: We use your information and share it with select third parties in order to facilitate the referral of information to the appropriate brain bank. and to otherwise make the Site function properly.
- To improve customer service: Information you provide helps us respond to customer service requests and support needs more efficiently.
- To research our services: We may use information in the aggregate to understand how our Users as a group use the services and resources provided on our Site and to evaluate the effectiveness of the Site and our marketing and business efforts.
- To improve our Site: We use User information and feedback to improve our products and services.
- To send Users information they agreed to receive about topics we think will be of interest to them: We use User information to share details, news, and marketing information about our services and the services of select third parties.
- To send periodic emails: We may use your email address to send you information and updates or to respond to your inquiries, questions, and/or other requests.
We may also disclose any collected information, including personally identifiable information, if: (1) the disclosure is necessary or useful to our provision of services; (2) we believe in good faith that disclosure is necessary to protect our rights, interests, or property; (3) we are acting in good faith to protect your safety or the safety of others, to investigate fraud, or to respond to a government request; (4) we believe in good faith the disclosure is required by law, such as to comply with a subpoena, search warrant, court order, or similar legal or administrative process; and (5) a third party purchases or otherwise acquires us or the Site, in which case your information will likely be among the assets transferred.
How We Protect Your Information
We have adopted appropriate data collection, storage and processing practices and security measures to help protect against unauthorized access, alteration, disclosure or destruction of your personal information, username, password, transaction information and data stored in connection with our Site.
Sharing Your Personal Information
In addition to the uses and disclosures described above, we share information with brain and tissue repositories in connection with providing services related to brain and tissue donations. We may use third party service providers, such as call centers, to help us operate our business and the Site or administer activities on our behalf. We may share your information with these third parties for those limited purposes.
Electronic Newsletters
If User decides to opt-in to our mailing list, they will receive emails that may include company news, updates, related product or service information, etc. If at any time the User would like to unsubscribe from receiving future emails, we include detailed unsubscribe instructions at the bottom of each email or User may contact us via the contact information listed below.
Third Party Websites
Users may find advertising or other content on our Site that link to the sites and services of our partners, suppliers, advertisers, sponsors, licensors and other third parties. We do not control the content or links that appear on these other websites and are not responsible for the practices employed by websites linked to or from our Site. Browsing and interaction on any other website, including websites which have a link to our Site, is subject to that website’s own terms and policies, including the privacy policy.
Changes To This Privacy Policy
We have the discretion to update this privacy policy at any time. When we do, we will post a notification on the main page of our Site. We encourage Users to frequently check this page for any changes to stay informed about how we are helping to protect the personal information we collect. You acknowledge and agree that it is your responsibility to review this privacy policy periodically and become aware of modifications. Your continued use of the Site following the posting of changes to this policy will be deemed your acceptance of those changes.
Children’s Privacy
The Site is not designed to solicit or collect data from individuals under the age of 13. In accordance with the Children’s Online Privacy Protection Act (COPPA), we do not knowingly collect or store any personal information, even in aggregate, about children under the age of 13. If we discover we have received any information from a child under the age of 13 in violation of this policy, we will delete that information within a reasonable time. If you believe that we have any information from or about anyone under the age of 13, please contact us at the contact points specified below.
Controlling and Updating Your Personally Identifiable Information
If you believe that the Site contains information about you that needs to be updated or corrected, you can update that information by contacting us at the contact information below.
Your California Privacy Rights
Under California’s “Shine the Light” law, California residents who provide personal information in obtaining products or services for personal, family, or household use are entitled to request and obtain from us once a calendar year information about the customer information we shared, if any, with other businesses for their own direct marketing uses. If applicable, this information would include the categories of customer information and the names and addresses of those businesses with which we shared customer information for the immediately prior calendar year (e.g., requests made in 2013 will receive information regarding 2012 sharing activities).
To obtain this information in connection with information collected through the Site, please send an email message to [email protected] with “Request for California Privacy Information” in the subject line and in the body of your message. We will provide the requested information to you at your e-mail address in response.
California Do Not Track Disclosures
We do not collect personally identifiable information about users’ online activities over time and across third-party web sites or online services. For this reason, at this time, the Site does not respond to “do not track” signals. Third parties may collect personally identifiable information through the Site as described in this Privacy Policy.
Contacting Us
If you have any questions about this Privacy Policy, the practices of this Site, or your dealings with this Site, please contact us at [email protected].
EU Data and GDPR Compliance
Individuals in the European Union (EU) may have certain rights with respect to their personally identifiable information which is protected by law (“Personal Data”), including the rights to:
- Request access to and rectification or erasure of your Personal Data;
- Request information about our processing, including categories of your Personal Data collected, information about the source of that collection, the purposes of processing, the recipients or categories of recipient to whom your Personal Data has been or will be disclosed;
- Restrict or object to how we process your Personal Data;
- Withdraw your consent for us to process your Personal Data in some circumstances;
- Lodge a complaint with a supervisory authority; and
- Receive your Personal Data provided to us or have that Personal Data transmitted to another controller without hindrance (also known as “data portability”)
To exercise any of these rights please contact us by e-mail at: [email protected] or by mail at: The Brain Donor Project, P.O. Box 111002, Naples, FL 34105.
We reserve the right to ask for information verifying your identity prior to disclosing any information to you. Should we ask for verification, the information you provide to verify your identity will be used only for that purpose, and all copies of this information in our possession will be destroyed when the process is complete.
International Transfer
Your information, including Personal Data, may be transferred to and maintained on computers located outside of your state, province, country, or other governmental jurisdiction where the data protection laws may differ than those from your jurisdiction.
If you are located outside the United States and choose to provide information to us, please note we transfer your information, including Personal Data, to the United States and process it there. Your submission of information to us represents your consent to that transfer. Please note the EU has not adopted an adequacy decision with respect to data transfers to the United States, nor are we a participant in the EU-US Privacy Shield; however, we value your privacy and protect your data using reasonable information security practices.
We reserve the right to store your Personal Data for the amount of time we reasonably determine to be necessary in order to perform the purposes for which that information was collected or otherwise processed.
Provision of your Personal Data is necessary for us to be able to perform our services and operate our Site. If you do not provide such necessary information, or if you delete or remove it, we may not be able to perform services for you and you may not be able to access or use certain elements of the Site.
This document was last updated on August 6, 2019.
